Dementia Resilience - 8.5.18

Sunday, August 5th

Jill Lorentz originally hails from the great farm country land of Illinois and has lived in Denver since 1984. When her mom was diagnosed with a form of dementia in the early 90's, Jill dedicated her life to learning about the disease, which lead to her career path of working with families and professionals who need assistance in this area as well. Believing caregivers can hold the key to setting the tone of emotional stability for the person with dementia, Dementia Resilience with Jill Lorentz sponsored by Belleview Heights Alzheimer’s Special Care Center will take an in depth look at how we can strengthen our techniques, strategies, and even our compassion to help people live with this disease; not to struggle with it. Our show's goal is to have a candid conversation about dementia and its effects on those it touches and to ignore ridiculous talk of a stigma attached to Alzheimer's. Resilience is your ability to adapt well and recover quickly after stress, by overcoming obstacles and adversity to find a positive outcome. People who have a resilient disposition are better able to maintain poise and a healthy level of physical and psychological awareness in the face of life's challenges. This 1/2 hour radio show, Sunday mornings from 10:00 -10:30 will explore avenues of intentional care and finding moments of joy while living with dementia. 

Transcript - Not for consumer use. Robot overlords only. Will not be accurate.

Welcome to the mental resilience we chill arrest sponsored by ability heights alzheimer's special care center. I can't in conversation as we learn about dementia and alzheimer's and it's effects on the people we love you. Jill has years of dedication and experience and so do you adapt to recover and overcome obstacles and help find a positive outcome. It's time for dementia resilience within Jill our friends. Hey good morning to my caregiver nation Americans with diagnosis. Put together showed today you really going to enjoy. I'm recently. I was at aid training seminar with the renowned. Alzheimer's and dementia educator. And it struck me that through this this course that I was listening to. The person I was talking was basically saying that people with alzheimer's have a tendency to. Just have no filter on their mouth they curse so lighten things like that. And to be honest with you and all the years I've been working with people that have any type of dementia parkinson's. Foul temper role. Alzheimer's to go Campbell sclerosis. I haven't really experienced that as a whole. So today I thought what would be fun if I can go back through some of the end home assessments that I have facilitated. And just take some of the quotes from the people living with. These different types of dementia and talk to you about some of the things that they're saying about how they feel about the disease. So I think I just kind of wanna die mint chip but I also will do a little recap on. On what alzheimer's is I won't do them on now parkinson's and other things but but I wanted just dive in and talk about these things up. First of all I wanna start but there is no I send them. We are all in this together OK and just because a person has a type of dimension. Doesn't make him immune to being hurt by the absence of common courtesy your by the lack of sympathy here in the B regarding what it means. And help deals to be unable to recall events. Stevenson. You know sign our names are at a tire shoe laces that kind of thing. So. Have been said that. Guess until MM people computer problems as minder with me went up Peyton went up. Patient and gets. Respectful and social support. And educated understanding by caregivers. The people with alzheimer's and other dimensions are able to flourish far beyond what. We might otherwise. Expected them from a medical point of view. And far beyond the expectations created by the negative stereotypes. I think perpetuated really by mass media that also training classes so I wanna dig it ended that so. Let's just talk about fundamentally what is alzheimer's. This diseases a progressive degenerative brain disorder. And it occurs gradually and results in profound memory loss. Changes in behavior and reactions. Thinking and reasoning in a significant decline in overall functioning an ability and these losses result. From the death of nerve cells in the it nerve cells in the brain we call those neurons and the breakdown of the connections between those neurons we call some lapses. And those enable the brain to transmit messages. So what happens is we discovered that large numbers of neural regular fibers tangles and and plaques. Are responsible for Reese destroying those brain cells. And the tangles. Our consisted of mass intertwined elements of the tau protein that I've talked about many many times on the show. That my mom had a little bit more of than anything else. And the plaques are composed of the amyloid protein that many of you know about and think about when you're talking about alzheimer's. And those sit outside the amyloid plaques cells. And becoming the depository decayed nerve endings okay so those are the hallmarks of alzheimer's disease. Now having said that there are many other pathological on neurological dimensions of these diseases the scientists are looking at. And how they eat fine alzheimer's and so forth. But I want to define it see you today by talking to you about people with what. What people with the disease are actually saying okay. And it might hold some clarification for those of you who are caregivers. Who wonder you know what the beginning stages of these diseases what are some of the things that we could note. As being something that gives us a clue something's going wrong some just a just died in here so. I had a lady on assessment told me tell me that she was driving into town to get her hair done and she said I was supposed to make a left turn. But instead I went straight right in the oncoming traffic. A policeman pulled me over and I told him that I didn't know why I did it. I didn't the same route all along and never had any problems it was so strange and it was so scary. I really could have hurt someone that was the first time I knew that there was something wrong. I thought that was really honest because even when people with alzheimer's are self aware. The medical community. Seems to assume that they have little insight into their own condition. And oftentimes. That results in people being treated in less than compassionate ways. And it leaves people feeling dehumanized by the doctors are evaluating them and they feel like they've been reduced to a set of symptoms classified. Customize them into a diagnostic category N and they don't really wanna do that right not just doctors richest people in general. And so would it be nice if we just simply act Canada and then valuable phrase to people to tell me you are not alone. Like the police officer who is very kind to this woman when she drove the wrong way in traffic. It seems kind of trite but it's often. Really absent from the way we worked with people. So here's another thing somebody told me on an assessment she said setting the washing machine is getting to be a problem. Sometimes he'll spend an hour trying to figure out how to set it. I can started out with a bang but but alas slow and I am totally confused. And then I leave the deed close in the washer and they get wrinkled and I have to start all over again. So. I thought it might be just really interesting to see it for you to hear some of these things people say here's another one. This gentleman said is seems like my caregiver has to do too much and I can't do anything about it. He has to do all the cooking it fixes all the meals. I can make the sounds of the table and do what I can't help. We used to do a lot of entertaining. And I take pride in setting a nice table but now I don't even know which side the fork or knife is supposed to go on. I'll get the plates on and then all get the silverware. And analyze my brother tell. You where these go. The show me but then I don't remember the next second. The simplest things that I've done before I can no longer do sometimes I can do them now and sometimes I can't. And then when I can't I think he wonders if I'm just pulling all of this off. China manipulating. It's kind of sad. You know I I really want to point that out because of fluctuation abilities is really confusing to vote those affected and their friends and families. And those inconsistencies. Really make. That person. Seem like there and you know more demented or less useful and that's really not the case. And they also attribute to. People thinking inaccurately that it's laziness or lack of concentration or unwillingness. Or just a farce. And the stated Dave variability. Is common with alzheimer's and other types of dementia. But it can also contribute to the feelings of disbelief so pervasive. In the earlier stages that family members often wonder. I've been taken for right. I really think so I really don't. So some have never talked on the show. About is visual and no Asia and it is super perplexing. With the symptoms of alzheimer's. And that's because the person's visual acuity is good and they concede but. Through the disease they'd lose the ability to recognize or identify what they just saw. To take a look directly at the night like that gentleman did and see it clearly but not be able to decipher its meaning. So at no Asia is combined with a more common problems of impaired desk and space shall perception. I gave in to what people can see in what they cannot see and hear from the people themselves. If these quotes that I have today so we come back from our break we're gonna get into more and more about why this is. Affecting the people with alzheimer's and how to text or caregivers. Making the decision to place your loved one in the care of others is one of the most difficult decisions you'll ever have to make it that someone special is in your life and is needing memory care. Bellevue heights is the place to call home. Bellevue heights part of the GA's senior living Stanley is deeply committed to serving people living with alzheimer's and other related dimensions. Living with purpose and meaning is the best reward at Bellevue heights alzheimer's special care center. Your loved one will live life to its fullest licensed nurses aren't step 24 hours today. Compassionate caregivers Krewell balanced meals and three healthy snacks are a few key elements of the G-8 eat a difference. We also offer fully furnished private and semi private rooms and meaningful activities and scheduled outings. Called Bellevue heights at 3036900700. To learn more about the high standard of individualized care they can offer your love when. Bellevue heights alzheimer's special care center. Is located at 14 or 500. East Bellevue avenue in Aurora visit JEA senior living dot com. Or column 3036900700. To schedule a tour come come to Stanley come home to Bellevue types. Welcome to dementia resilience we chill arrest sponsored by building heights alzheimer's special care center. I can't in conversation as we learn about dementia and alzheimer's and it's effects on the people we love. Jill has years of dedication and experience help you adapt. Recover and overcome obstacles and help find a positive outcome it's time for dementia resilience within Jill our friends yeah. OK and so today I'm talking about. Difference things that people with alzheimer's and other types of dementia and memory loss like Parkinson's disease Louie body and so forth. Have told me about how they feel about their disease how they feel about people caring for them and so forth so before winter break I was talking about I know Asia. And I know Asia is a sin is a symptom. Where the person. Has issues with space shall debt how far aways something he has or does he does item they're looking at. Look like what they think they're looking at hope that makes sense CR try to make it a little bit more clear and in the quotes I BB here. But as an example. It it causes the brain to not be able to affect the it. Or a judge the distance of something like this step I'll give you an example. I have a client named Jim who fell down some steps recently and when I was at the home doing in home assessment. For the second time in two years. I noted that the concrete stairs. Really looked. Like they were all the same color so I sent to your family you should put some painter's tape blu taper something like that at the edge of that stare because. I can see just fine I don't have any kind team impairment. But that stared did not look like it went down you just look like a large continuum of concrete. So those kinds of things. Happy and that's why people fall. It's also white people with different types of cognitive impairment memory loss who reach for something in their handle all. Far short of where that object is like a cup berth the last or maybe even. Putting a couple on a table they'll miss the table and it'll all it'll spill it. And that's why those kind of things happen. So we call that I know Asia. So one thing that is frustrating. To people with memory loss and other caregivers is when they lose something. So want folks told me that she finds it very frustrating when she goes back to look for something. That she placed somewhere as can't find it raped and she says. She know she probably moved it. But she gets aggravated because she can't find it and she think she should just forget about it she says sometimes I think this is gonna make me crazy. But then. What I look for something I find out is lying right in front of me and I won't even see it. So my daughter will say it will mom there's at pearl necklace it's right there can she see it. But if it's on a white tables she can't see it Porsche just doesn't recognize. What it is. So. She's that I don't always misplace things sometimes it's right there. I just don't recognize them as like that are really really hard for people. And it's even harder for their caregivers to understand. So as an example. Another example the association to be. To the actual item king do you really grade like a bread box and a jury box can seem like one in the same. So pearls her pearl necklace they end up to the cancer. That's why she can't find it right. And sometimes you just get really hairy when you're looking for something she would tell me. And she just can't find it just basically because she's so stressed out looking for the object and she can't identify it. So she said even if somebody just said howdy how would you describe your necklace she'd say well it's got small. Beads strung together. But she can't come up with a word of their pearls. OK it's a pearl necklace. Another thing and that happens a lot is people tell me that they can't handle their money. Once day. Get progressed in this disease and even in the early stages so a woman told me she said I can't even identify the money in my pocketbook. I don't know. What's a dollar I don't know what's a ten dollar bill I don't know what's a hundred dollar bill. And worse yet she can't recognize the claims she doesn't recognize the difference between. A quarter and a dime. And she said Matt medical. Calculations have become nearly impossible. So you know we don't think about these kinds of things when we're talking to someone. And were saying hey you know we we need to do your word. Checkbooks out because you can't do them. We're kind of abrupt with Sam. And they feel like we're just sort of bloody knee and then in taking over and and it doesn't feel good to them you know but but they also do realize. They can't judge money. They can't balance a checkbook anymore. But it doesn't mean they want somebody coming in gangbusters. Trying to take over you know so how to we figure that all out. So another thing that happens. Are the with the visual issues of that no Asia when my client is told me that when she goes to church and people tried to shake her hand or give her a hug. Because of her visual as facial problems she's unable to respond social just standing. So she says sometimes. She can't locate degree your hand accurately in the space shall realm. And it becomes really. Uncomfortable. So she says as a result the common misperception. That she had become more impaired. And that's why she can't shake that person's hand. Is unfair but she said I really just I can't say. I can't reach my hand up his on venom mission you can I can't see where you are. And she said she knows the rules she just can't comply with them just because somebody has to give somebody a handshake so we. Of those kinds of things when we're working with somebody we don't even think about it we're talking to somebody. We just figure well they're really impaired and we're just gonna have to sir do more things form instead of just maybe taking their hand and a in a way that is comfortable to them as opposed to reaching on hand and expecting them to. Reached toward you does that make sense. Yeah act so if we don't get how bored with these folks what's gonna happen is they're going to feel like they're isolated. They're lonely. That they can't go out because of an embarrassed themselves. And when that happens say their loved one is caring for them their spouse or whoever won't go out either and that puts everybody at a risk. We're becoming isolated and we certainly don't want that to happen right. So. Another thing at person said. I still have trouble. Getting dressed. So I don't do it myself anymore. I have a girl who comes in and does it for me and it's a relief. She comes in every morning and gets a shower going and takes care of the rest of it too I feel so helpless. But I can't do anything about it. And we knew that I needed to have some help. The girl is precious she's really sweet she dresses me and if she's not there my husband can do it but it's a hassle. I don't know what to do and he doesn't know how to do it hit at it so neither of us end up doing anything I think maybe I should just join in nudist colony. I thought that was really adorable listen we'll be right back and we'll have more of this discussion. Living and working with alzheimer's and other dimensions can often be challenging. Summer resilience training provides education and utilizing non medical approaches for those who work with our friends affected by dementia. Delete delete delete one on one assistance we provide classes which helped them understand diseases affecting their loved ones. Different strategies and techniques for success with the activities of daily living and working with confusing behaviors. We offering in home sustenance. Education programs into killing persons under your philosophies are offering professional caregivers working in communities and homes and which can be customized for their staff. Training is also available for first responders. We are passionate that people would dimensions and such as alzheimer's parkinson's and others. Our approach would compassion and understanding. And those who work without having all the tools they need for six us. Call us at some resilience training 3034206988. To schedule class or in home assessment. Visit our website at summit resilience training dot com for more information. Welcome to dementia resilience we chill arrest sponsored by a million kinds alzheimer's special care center. I can't in conversation as we learn about dementia and alzheimer's and its effects on the people we love. Jill has years of dedication and experience help you adapt to recover and overcome obstacles and help find a positive outcome it's time for dementia resilience with the Jill our friends. Okay so today I am talking about. And the people that I have facilitated in home assessments swift. And it's just different things that they told me about what it's like light to live with there different types of cognitive impairment different dimensions. And I think it's really important to stress this doesn't start. Just overnight and then you move fast forward to late stage. You can go many many years in the early stage. You know many many years in the mid stage. And if you take the time to talk with these folks they you'll give you great insight into what is going on for them okay. So. I would you share that view of these. Different quotes of people told me here's one a lady said. I never my life dreamed that I would have trouble getting dressed goes so used to doing it. Now sometimes I put my nightgown on backwards. But all of the above me I can sleep with that on the right side of the wrong side just let me get in the bit I like nicely. She also said I can beat myself to a point. But I have a hard right hard time identifying the food I can see it but I can't tell what you did this. So it's a hassle today in my here caregiver was. Will running chat with the chocolate ice cream and helping me you continued to put it in my mouth any spilled it all over me. We try to find amusement in my disability. I think that's a good way to. Just be resilient and say hey I'm. You know it is what it is I'm gonna just keep getting better it's a difficult situation I'm gonna try to be happy. You know that kind of thing so. You know people out there don't take it too seriously if you spilled food on yourself or or your loved one does it's that's facial issue I was talking about. Okay. There was a guy who was a journalist and he went all around. The country and now around the world writing. Articles for a magazine. And he said the first time he notices increase cognition impairment was on a business trip and he was talking to colleagues need became completely tongue tied. He said it was so sudden an embarrassing. He set I was hardly able to show them around because my lapses in memory. People continued at problems continued for most of this day it didn't surface again until several more years when I was later you when I was in India us. And I started to slipper a tape recorder in the step meanings because I couldn't take notes remember. This was also about the time that my spelling went want peace so I bought a pocket speller. You know you said when his wife and sister resting to get checked out by a doctor he was angry. And he was angry at the doctor to be set I felt like I'd been turned in against my will for having alzheimer's. We've been planning to retire in three or four years. And all of a sudden at age 54 is seem like I was labeled incompetence after a lifetime of proficiency. So. That's really will set I think people. Feel like. Cash you know also none un plug along and also owners everything's going great and the next thing you know I have a few cognitive issues. And they build they build over a couple years I have trouble talking I have trouble remembering people's names I have trouble with. With dry evening and things like that the next thing you know I'm labeled. As a deficient person and that's painful it's hard to to deal with you now. Here's a person that really had a good hold on resiliency. And she said that she likes to count is still next and discuss the news of the day with her caregiver. She said she plays tennis two times a week as she tries to right on the computers much as she can't. I watch a lot of TV it's funny because I always hated television but now I need it. It helps in because I can understand what I hear as long as a person doesn't speak to quickly. I try to read that it's very difficult. And the lunacy of this gets to be. Were sometimes I forget what is on the page and read along the lion the that I go to the next line and I can't find it. It takes so long to find the next line and I forgot what I was on the previous client so I just perfect pretend like I'm reading it. I don't that's so yeah it is okay because it really doesn't matter. Partly on the law front. All we have to do is try to live well and tried to just do the things that we can do as best as we can do it. One person said to me an AM assessment. I feel like I'm becoming more childlike. I enjoy it things children enjoy. I don't have the same responsibilities now and I can do it I want. So when I go on walks I get so excited about a rabbit or some other animal we may see on one of our walks there are a lot of steals on the path and people. Kept walking on them as stepping on them so I started picking up the large snails. And throwing in the dim in the shrubs to save their lives this is my only contribution to the world today. I got so this year I think peppers and yet have so much impeached instead the world I let that. So here's here's one I think a lot of people have talked he had talked about. Not being able to talk on the home with their loved 1 and am why this is so. Annoying. So this woman says. I don't like talking on the phone I have a cork carted my door with my name and address and all the stuff on it that I think I need to say to somebody. But does someone always come up with a another question that isn't covered on my paper. An a list gets bigger and bigger the more rattled I get the less I can pull out words so once somebody. Asked what part of the street I live bond or. The next question about how I am today she said sometimes I just go get so stressed out I put the phone down and walk away. I think that's very very honest. I just love love love these things I love that people will share how they really feel I hope this is giving some insight to people today. One woman says she went to the bank and the lady at the tellers. Booze said what is your name and she said. I could not remember my name to save my soul I got so rattled I just walked away. She's at the worst thing is it's difficult not to be able to meet somebody else's expectations. Or even my own. I think that's very poignant I think that's. I think that's really true I think sometimes. We just don't realize they're the little struggles these folks are going through and and how to help them through and and if somebody if you're on the public and you're dealing with somebody say at a banker restaurant keep patient if. They don't seem death answer something correctly they're doing their best in their Tryon it's very scary for people with alzheimer's and different types of cognitive impairment to be out in the world. Hey at another one they came up with somebody said. I asked my friend the same question over and over and organs were always curious about repetitive questions. As she said I don't do it do it deliberately is just that each time it's like a new idea. Then I realized by her face it it's not new. And that we've talked about this more than once it's a good thing she's patient doesn't say you already asked me that. She just gives me the answer again maybe after three or four times I'll remember the well god bless you girl I hope they you do remember and if you don't that's OK as a family and friends are for okay so. I think as we acknowledge alzheimer's and cognitive impairment in our families with their friends what we really have to do is try to be compassionate. And I understand that the bottom line is what it that were us right. What if what if we were the ones that have this disease how would we want people to treat us. I hope you all have found some of those interesting today. The people with alzheimer's don't want to hide it. They don't want to stay every clues even their homes they get lonely. And they need to love so added touch of love. As a person with alzheimer's relinquishes some control over their life. And also. They're concerned about you being courageous. End and being nice today and they don't wanna be violated by insensitivity or harmful care. So I think this is a very poignant waiting in this Cellini said but I forget something I want people to be mild with me. Do what you have to do but appreciate. But he appreciated touch of love rather than a touch of hostility hostility will cause you get rebel treat others as you would like to be treated. You wouldn't like me to be beating on you all this time. So folks let's be nice to our folks up there I hope you have gotten a little insight today of what it's like for our. Family and friends to live with this disease and I'll have more important information like this for you next week. On dementia resilience was still around. You've been listening to dementia resilience blue shield around us sponsored by a billion price alzheimer's special care center. Visit the website I had so that resilience training dot com. On to learn more and join us next week as we learn more about dementia or alzheimer's and overcoming obstacles for the positive outcome. See you next time.