Dementia Resilience - 8.13.17

Sunday, August 13th

Jill Lorentz originally hails from the great farm country land of Illinois and has lived in Denver since 1984. When her mom was diagnosed with a form of dementia in the early 90's, Jill dedicated her life to learning about the disease, which lead to her career path of working with families and professionals who need assistance in this area as well. Believing caregivers can hold the key to setting the tone of emotional stability for the person with dementia, Dementia Resilience with Jill Lorentz sponsored by Belleview Heights Alzheimer’s Special Care Center will take an in depth look at how we can strengthen our techniques, strategies, and even our compassion to help people live with this disease; not to struggle with it. Our show's goal is to have a candid conversation about dementia and its effects on those it touches and to ignore ridiculous talk of a stigma attached to Alzheimer's. Resilience is your ability to adapt well and recover quickly after stress, by overcoming obstacles and adversity to find a positive outcome. People who have a resilient disposition are better able to maintain poise and a healthy level of physical and psychological awareness in the face of life's challenges. This 1/2 hour radio show, Sunday mornings from 10:00 -10:30 will explore avenues of intentional care and finding moments of joy while living with dementia. 

Transcript - Not for consumer use. Robot overlords only. Will not be accurate.

Welcome to dementia resilience with the chill arrest sponsored by ability heights alzheimer's special care center. I can't in conversation as we learn about dementia and alzheimer's and it's effects on the people we love. Jill has years of dedication and experience help you adapt to recover and overcome obstacles and help find a positive outcome. It's time for dementia resilience within Jill horrendous yeah. Hey good morning to all my folks out there and caregiver nations. You know what. Today I'm gonna start with doing a little bit of past updates and things that I need my listeners have told me that I didn't mention. So I'm going to have to go back and retract and make sure I get everybody caught up so a couple of weeks ago. I invited care communities to give me a call and let me know they wanna meeting come out. Evaluate their properties and see if I thought they were person centered care places. And I told you all I was gonna go to a place in. Lafayette and I did. I did and I am dreaming it number four yen. And they pay TV. Such an update this chair community is a landmark memory care for those of you that live in the north metropolitan area are further north. It's at 1744. South public road in Lafayette and it's owned by the handsome manly Debra Peter and their kids. It is an excellent community I loved it read toilet seats. Good coloring due out calming place absolute person senator cares so Bravo. Hanson family glad that due to group okay then. The last week I met people at the art at aging. And did not mention them on last week's show. So I wanna give a huge shout out to Richard and Darlene do not see you to come and buying giving me hugs and tell me about the shows that you like. Love it love it love it. Joyce Carmen come lea Linda Dana Judith. Denise all of you in my chair urination muddied pieces love you to pieces keep calling keep telling me that things that you want to. Cheer on the shows and things that you really like about the show. And then. Next week when talking about a new section of my website is going to be a one stop shop for information. For caregivers and people with a diagnosis and you're gonna love it people who have been on my show like my against a mini energies in just a minute. Are gonna write pieces for you. That you will be able to go on and look for everything you need from end of life to how to use have been strategies and techniques and so forth okay. And I'm super excited that. Next weekend my sisters are going to be on the show we're gonna have a few laughs talk about my mom her situation. And how we were humorous. But serious about her care. So win that let's move on to. My guests welcome frank and my nurse. They wrote could not be happier to have you here today I'm thrilled to be here which you can make would you do something for me tell my listeners a little bit about yourself. Sure I'd be happy to and a dietitian right training and I spent about seven years in a facility where I was managing to feeding. Then around noon I know then move on line hands I worked for our hospice. For several years. It's worked for the conversation project and I currently work there as well and it's. I think in putting the three of them together the conversation project is about posturing and of life conversations. And getting people to. Figure out who their health care agent desk can I am I have felt very moved to work with advanced care planning. OK so oaks you know from my listeners. They really need to know what to do to be ready. And if they have a terminal illness or their loved one has a terminal illness and making sure that their wishes are honors. You know I mean so they can have a dignified. In the life and what you just about the conversation project tell us how that. Kind of intertwined in ism is integrated with it and why that's important. The conversation project is a masterful way. Of getting families and individuals to about some of the softer aspects actually offender for life. The script starter kit for example talks about. Would you want your physician to make all the decisions at the end of life or do you wanna make the mall and there's a one to five scale. And would you want to be homer would you be OK being in a facility time. So let's start conversations that people don't typically. Think about initially but any move on to choosing a health care agent which is so important right now a lot of people don't have them. And that's why I want you on the show today because you could help them with that. So when I first met you you had talked about something really important and that we use a lot acronyms in this world. But eight in D&C. MO. What do those mean and why do you lies that terminology. AMD is a great term it means allow natural death. And that sounds great it's sounds so much more pleasant. Then some of the other terms of high Aiken. We're going to use CM of comfort measures are only so they truly are tied together while interest to tell us more. Yeah hi in allow natural deaths that goal is to keep your individual. From having to be rushed to the intensive care unit at the emergency room on the how fast highway that we take. On a regular basis about letting someone be comfortable making sure that you are. Meeting their needs for. That caring and of life where your holding hands and putting lotion on their feet making sure their pain has managed. And very very possibly having them on hospice right because there isn't nothing much better for allowing natural death and comfort measures and hos that's the ten. So did little deeper into CPR and DNR. Okay CPR we know is. Cardiopulmonary resuscitation. And CPR is so effective on television which is where we get a lot of arm yeah it is kind of here is the airline a whole bunch of medical students sat around and watched medical TV programs and figured out that 74%. Of the tie him CPR is a fact as. And you know but it's surely not. And that's really unfortunate but any of you who have done CPR is seen CPR actually know that it's pretty rough thing to go through. And particularly. Unsuccessful. In older people and frail people. Okay right and do not resuscitate that's a big issue and when people get to the end of life they don't really understand what that means and someone has a directive. And that is really where comfort care comes in right. That's frayed do not resuscitate sounds so negative. In comparison to a and so when I'm talking to people about choosing. Do not resuscitate actually start with a lot of natural death. Because it allows them to put themselves. Mentally. In a picture where they are being comfortable and being able to. Paso way in a wave that is much more dignified. And then if they think that do not resuscitate. Is. Difficult scenario no it's not it's allowing someone not to have that aggressive aggressive treatment at the hands. Right and how this relates to dementia and alzheimer's and dementia is that. When someone is so far progressed into this disease there really relying on there. Family agent whoever it is that's in charge of their care of their parent attorneys and so forth. To really take care of them they're not going to get better it's progressive terminal disease. And so what are we holding on about. Now the reason why had you on the show today in the first place Fran is because one of my listeners happened to mention that his wife is pretty far progressed in this disease. And he loves the show he listens to it every week. But he said you really don't cover the things I need like what do I do when she gets close or if she gets pneumonia or she gets the flu this. This year you know those kinds of things and then when we first talked we talked about a far formed called the most form MO ST it's another Akron him. We're gonna take a break and in listen to work from our sponsor but we come back which appear Dahlan in. Explain that most formed to my listeners I sure will thanks I appreciate that and two. Martin the person that said we don't do shows that have anything that he needs this one's for you daddy okay. Our will be back just a minute left we hear word from our sponsor don't be nights. Making the decision to place your loved one in the care of others is one of the most difficult decisions you'll ever have to make if that's someone special is in your life and is needing memory care. Bellevue heights is the place to call home. Bellevue heights part of the GA's senior living Stanley is deeply committed to serving people living with alzheimer's and other related dimensions. Living with purpose and meaning is the best reward at Bellevue heights alzheimer's special care center. Your loved one will live life to its fullest licensed nurses aren't step 24 hours a day. Compassionate caregivers. Three well balanced meals and three healthy snacks are a few key elements of the G-8 eat age difference. We also offer fully furnished private and semi private rooms and meaningful activities and scheduled outings. Called Bellevue heights at 3036900700. To learn more about the high standard of individualized care taken off for your love and Bellevue heights alzheimer's special care center. Is located at 14 or 500. East Bellevue avenue in Aurora is it JEA senior living dot com. Or call 3036900700. To schedule a tour. Come come to Stanley come home to Bellevue types. Welcome to dementia resilience wind chill arrest sponsored by a billion highest alzheimer's special care center. I can't in conversation as we learn about dementia and alzheimer's and it's effects on the people we love. Jill has years of dedication and experience help you adapt to recover and overcome obstacles and help find a positive outcome it's time for dementia resilience with the Jill horrendous. Hey friend. Who we talked about CPR you forgot to dig a little song for me. When's CPR is done. Have those compression need to be pretty quick and that triple the matter is you're supposed to be Singh and yourself. Saying I Stanley had. Asked that's occur and yeah. Enable we left off. In the last peace we were talking about the most form MO ST MO ST it's an Akron and explain that form force why it's important. The most farm has to be filled out by a physician has to be signed by position. And it that go of this is to allow you to have documentation. On the hand that specifically. Identifies if you want CPR or if you are a DNR do not want resuscitation. So this is a form that unfortunately. Is the only ticket. To do not resuscitate its. Which is to say that if you don't have it on you if isn't visible to. Am medical personnel. They will do CPR because that is their job. OK so Richard Darlene another thing to put on your refrigerator. Absolutely. Put on your refrigerator and get multiple copies of that he can 'cause there are many people who will potentially be with your loved one. The most fun though isn't filled up for somebody who is robust and young. You'd like to won't do that trio play but if you are somebody where it looks like the arc of your life might be coming to an patents. This form filled out needs to be. First of on the refrigerator so that the rescue squad folks can come in and get acts but sect and it needs to be available in. On who ever is taking care of that person sulfuric caregiver somebody from a home care company and whose tape is or anyone who's taking you to the doctor or. On some kind of an outing the most form needs to be with you say you need to make multiple copies of it because unless it is in the hands. Of the EMT. CPR will be done you can't say no no no they didn't want it I promise CEO now it's a doctor's order learn that's a big deal. What slow medicine France. Some medicine is a great term. I always say we are on the highway the freeway to the intensive care unit and that emergency room and the reason I say that is because all of our lives. We're so focused on treating and treating quickly getting to the doctor solving our problems take your medicine. Yeah some medicines. Chemistry that is test in the truth of the matter is that when you get farther along in your disease process. That's not really where we ought to be thinking about being we need to be slowing down and making considered decisions. Now whether we really want treatment if we wanted to chase secure from what we're really looking for is symptom management and that's the slow medicine is about. OK and you have a favorite book by K Butler and that relates to who's that talks about the x.s and the bridges. Sure Katie butler's book called knocking on heaven's door. Talks about her dad's illness that started out with a massive stroke and then led he had dementia. And one thing after another happens at that made him leaned very any very difficult state for many years. When she reflects back on that she thinks about. I'm gonna call the exits that were possible so for example. Mr. Butler was very unhappy with his circumstance. It's very unhappy very uncomfortable and his wife was just devastated by how this had affected her life. At one point tag name. Up an illness he had a GI problem and they need to do surgery on him. So my gosh we can't do surgery on him until we do pacemaker first he might not make it through the surgery so there was this frantic fast medic medicine's scenario. He had a pacemaker put him and quite frankly that had quite a bit to do with the reason he continue to linger. She's a huge supporter of slot medicine okay. Wow what's it x.'s X it bridge. So prince is a treatment where you say is this going to end up with this individual. In better shape or easily be in as good shape as they are now. So an example I have for you Zach. And it's a quick woman is a friend of mine. Had a very dear friend who had a hug it was a home invasion and his she was shot in the job. He just a ton of blood had devastating injury but it isn't just late fifties. And he was taken to the emergency room they whisked him off to surgery he had to have a panel later he had to have a team feeding. And you know but after a lot of months he was able to get all of that any easing gauge my girlfriend now yeah. All that I don't know whether to bridge but for that so many times if you put someone on a ventilator or honest to feeding and there are elderly. The outcome is not going to be a great bridge and may be an exit would have been bad. And so you were so heavy with this today that you know what for the Martins out there on the world you told me we don't talk about things he needs this is important stuff. And why should that family be kept in the loop why do we need families on the same page to be prepared. You now a lot of the times in life that everybody gets very emotional as when they're seeing their loved ones fade away. And you know the people who are at opposite ends of the spectrum. In terms of what their beliefs are about end of life. Our can cause such misery for every one. It is such a struggle when families are not on the same page. So if you're going to plan a treatment plan that's comfort measures only allow natural death don't want to do. CPR. Those kinds of things including the exit strategy which might well be. If my loved one gets the urinary tract infection we're not going to treat with antibiotics. Were going to provide comfort measures. It may be something that is harsh trying to family unless they know ahead of time that is the plan. Right and that includes the flu. Include some ultimate idea pneumonia a different things that can happen in somebody's in late stage dementia. These are things we need to think about where not advocating night these people are not important or. They're not loved or we don't care about the many more than just a shell of who they were. They can't eat anymore. On their own and things like that but we are saying if there. If there in the late stages of this disease and end the end is near police have the plans in place. That's right and I think that the concept of potentially tube feeding someone who has dementia and is not eating well. Is just not one that is supported because. Eating being fed soft foods being fed slowly. Is far better than putting in a two feeding them may very well. Cause an ammonia and certainly does not enhance your life right I couldn't agree more so. Disgusting and. The issues with the person with dementia may be before they get too far progressed making sure families share. How they wanna be remembered. All of those things are super important right. Absolutely. If an individual when mayor in the early stages of dementia. Can help you. You're out really what their values are that's a great thing you will be in a position where you'll have to make decisions there is little doubt in in Matt. But I always loved the thought that when somebody is. Began in early stage in the and is cognizant it's a great thing to be able to have them tell you how they wanna be remembered. And I love the fact that before my father passed away my sister said to him. So dad how are we gonna know how you're doing once she passed away and he said. When it rains it rains pennies from Hampton the fact that's a as pick up even agree it's pennies on the floor at 7-Eleven and think thank thanks dad couldn't hear from me up up up. I love that. Well aware were written kind of a little bit of a heavy discussion today but I think it's things are listeners he did know and that's why we like to have a candid show we're gonna listen to word from our sponsor again we'll be right. Making the decision to place your loved one in the care of others is one of the most difficult decisions you'll ever have to make. If that's Simmons specialist in your life and is meaning memory care W heights is the place to call home. Bellevue heights part of the JEA's senior living family is deeply committed to serving people living with alzheimer's and other related dimensions. Deli heights believes that supporting families and caregivers is just as important as caring for our residents we offer free monthly support groups. Education and lecture series and presentations by experts in alzheimer's and dementia care. All of our programs are free and open to the public. Called Bellevue heights at 3036900700. To learn more about the high standard of individualized care. They can offer your loved one. And ask the matter current and upcoming education opportunities and support groups. Tell you how it's alzheimer's special care center is located at 14500. East Bellevue avenue in Aurora. Busy JEA's senior living dot com or call 3036900700. To schedule a tour come on to Stanley. Come home to Bellevue heights. Welcome to dementia resilience with the chill arrest sponsored by building heights alzheimer's special care center. I can't in conversation as we learn about dementia and alzheimer's and its effects on the people we love. Jill has years of dedication and experience help you adapt to recover and overcome obstacles and help find a positive outcome. It's time for dementia resilience with the Jill our friends yeah. Brandon Myers so happy to have you here today. I'm happy to be there Anderson and haven't a conversation with me about all this it's important to our listeners so. Let's just get down to the brass tacks here when we're at the hospital. Or at our home that time is upon us. How do we make sure we have everything in place how do we know we have everything covered. Well if you're in the hospital it's very important that they know what your wishes for example if you want not to be resuscitated they must have that most form and people must honoring its. If you if this individual is not eating and wants to just not he did not drink that we aren't pushing them that the staff at the hospital. Isn't putting a big tray under them and trying to force them are trying to feed them to eat and so we need to express those things for shore. And it's it is very important that at home everyone's on the same page number one. And number two that the agent who has been chosen actually the agents so important in the hospital that the agent who has been chosen can speak. Very clearly to what the wishes are and what the agreement has been in the family and hopefully there has been one. But health care agent at the hospital as the individual who can and who who makes the decisions it when decisions have to be made and super super important. And can you help them sort this up France. Absolutely. Come one day when I was working out with the conversation project. I had one person say would you be my health care agent. And then six other people in the room who all lived in a senior housing and asked me because they didn't have anybody who was appropriate. Choosing health care agent means choosing somebody who will speak you were values. Who will either look back and say what would dad have won it what would mom have won it. War beach choosing what. What really looks like right thing at this point in the disease process and love the lady said she sure values how they reach you. They can and send beanie now at Fran didn't act advance. Care advocates. Dot or work. That's ran at advanced care advocate dot org and lots of people makes up the word advance with advanced there's no deal on the end of act. Okay and a lot of my folks don't have computers. So I hope you all have had a cannon pat in our write this down so tell them your phone numbers or they can reach you I sure well seven to zero. 595. 5451. I and in addition to actually being an agent for someone I can also coach folks I can coach their family is psychic tell sin number one more time. 720. 595. 54. 51 okay. So. Folks I'm gonna have France think about a final thought that she wants to share. I just wanna remind all of you with that you can reach me at 3039991961. To ask questions. Go web site and look at all the fun stuff I have on their books you can read. And remember we've got some fun stuff coming up my launch is going to be October 15. If you want to be on my email lists so you make sure that you get newsletters and and great information. Go on my website it has my email on their but it's Jill that summit resilience training dot com. C'mon prisons 1430 site and listen to all the good shows we have on here. And some of the good information you can get on various topics that's always a great way to do it. Hey this coming weekend my husband and I are having a concert in our backyard we do our acoustic blues concert it's our fifth annual. And we are raising money for doctor potter you all might remember that on in March on two shows I had. A lot of information about doctor potter and what he's doing and the fabulous research he and his team are are doing. For alzheimer's and they're making some huge. Huge advances and tomorrow and then find out what they are and I can't. Be more excited I really can't if you would like to donate to doctor potters. The research you can certainly call the stations here it. At 3036311430. Were alive showed they got a couple more minutes. Or you can email me at Jill at some resilience training dot com or you can call me 3039991961. And I will tell you how you can donate to that. So okay France. Final thoughts which again my friend. I'm always dream. I ended of some statements that were made by a physician. Come and I I can't get them out of my mind I actually put them almost to memory and it's just about this. When that the team walks out of a hospital room. Where there's been aggressive treatment that we know we shouldn't have done. You got their heads held down thinking that guys looking down on us saying. What the heck did you just do. And many goes on to say. And when it's near mine and I hope my family and my doctors will do what they should do not what they could do. And then in the end all be in familiar surroundings with familiar sounds. With fleeting glimpses. Of smiling family and a warm hands to holds an I didn't just read that I'm memorize great. And I can attest to that folks. Oh that's amazing and it's beautiful and I couldn't agree more I mean we. We went through this with my mom as my blisters now. And we made sure that. She had as beautiful a passing as she could possibly have and I have to tell you folks. Have death of course is not funny but at her going away party. Somebody actually said they didn't know if it was a comedy act or player what they were listening to. But the music. End. The comments of people made on the eulogies ending was so much fun. And we felt like we did it right. You know we we had her have a good passing and we sang to her. We gave her hugs people in the nursing home came around and end of all say goodbye to her and there's nothing easy about the passing of a person with alzheimer's we struggled with. You know feeding her so slowly and swallow momma swallow when their motor skills you know go away. But we took that time and I would seem dim her and my family would sit and talk with her and we teller things even when she could only communicate with her eyes sore. Or motor skill hand gestures and things like that. At one point when I was beating her two year point about. Doing well. Shenzhen a word probably three or four years as she stopped push this through no way ends that I love regional just out of the blue. And it was an amazing. Moment an absolutely amazing moment the CNA in the room that. Well let me get. Rid of this big ego and even know even when she was. Dying we would sing and Murray's songs to were we were singing. Some of her favorite Karen Carpenter songs and she opened her eyes and tried to sing with us. And few hours later she was gone so. I love what you do I love the you have the heart and compassion friend miers to help people that need help them feel like they're by themselves so. I appreciate being on the show. Yeah river and thanks for inviting me you and again keep your phone number one more times 72059. Science. 5451. And I would look forward to talking to and even who wanna call absolutely. And if you wanna com meet tomorrow. Might get a lot of calls and emails on Mondays I'll connect you with France. And I hope you all have a great rest year today. And next week's gonna be a lie happy fun. Conversation with my sister's. So thank you blisters we'll see you next time on. Dementia resilient chiller. You've been listening to dementia resilience of jailed harassed sponsors five million priced alzheimer's special care center. Visit the website at some resilience training dot com to learn more. And join us next week as we learn more about dementia or alzheimer's and overcoming obstacles for the positive outcome. See you next time.